Xeroderma pigmentosum: nws yog dab tsi, cov tsos mob, ua rau thiab kho

Zoo Siab

• Cov tsos mob ntawm xeroderma pigmentosum
• Qhov tseem ceeb ua
• Yuav kho tus mob li cas

Qhov xeroderma pigmentosum yog qhov tsis tshua muaj thiab muaj caj ces muaj caj ces muaj qhov tsis txaus siab rau daim tawv nqaij rau UV sab hnub ci, ua rau cov tawv nqaij qhuav thiab muaj ntau cov quav hnav thiab cov pob dawb dawb tawg thoob plaws lub cev, tshwj xeeb tshaj yog nyob rau thaj chaw ntawm qhov zoo tshaj plaws tshav ntuj. , suav nrog daim di ncauj.

Vim tias qhov mob siab heev ntawm daim tawv nqaij, cov neeg raug kuaj mob xeroderma pigmentosum feem ntau muaj peev xwm txhim kho kev mob ua ntej lossis mob qog tawv nqaij, thiab nws yog qhov tseem ceeb siv tshuaj pleev thaiv hnub txhua hnub ntau dua 50 SPF thiab cov khaub ncaws tsim nyog. Tus kab mob no tsis muaj kev kho kom zoo, tab sis kev kho tuaj yeem tiv thaiv qhov pib ntawm kev mob, thiab yuav tsum tau ua raws li kev sim neej.

Cov tsos mob ntawm xeroderma pigmentosum

Cov cim thiab tsos mob ntawm xeroderma pigmentosum thiab mob hnyav tuaj yeem sib txawv raws li cov cuam tshuam nrog cov noob thiab hom hloov pauv. Cov tsos mob tseem ceeb ntsig txog tus mob no yog:

• Ntau cov quav hnav ntawm lub ntsej muag thiab thoob plaws lub cev, ua tsaus dua thaum thaum lub hnub;
• Kev kub nyhiab heev tom qab ob peb feeb ntawm raug tshav;
• Cov hlwv tshwm rau ntawm daim tawv nqaij raug tshav;
• Tsaus nti lossis tsaus rau ntawm daim tawv nqaij;
• Tsim ntawm crusts ntawm daim tawv nqaij;
• Qhuav ntawm daim tawv nqaij nrog cov tsos ntawm nplai;
• Hypersensitivity nyob rau hauv lub qhov muag.

Cov cim thiab tsos mob ntawm xeroderma pigmentosum feem ntau tshwm sim thaum menyuam yaus txog thaum muaj hnub nyoog 10 xyoo. Nws yog ib qho tseem ceeb uas tus kws paub txog kws kho mob tau tawm tswv yim kom sai li sai tau thaum thawj tus tsos mob thiab cov tsos mob tshwm sim thiaj li kho tau sai sai tom qab, vim tias tom qab 10 xyoo nws tshwm sim rau tus neeg pib txhim kho cov cim thiab cov tsos mob ntsig txog mob qog nqaij hlav, uas ua rau kev kho mob nyuaj dua. Kawm yuav ua li cas paub cov tsos mob ntawm daim tawv nqaij mob cancer.

Qhov tseem ceeb ua

Lub hauv paus tseem ceeb ntawm xeroderma pigmentosum yog qhov pom muaj kev hloov pauv rau cov caj ces hauv lub luag haujlwm kho DNA tom qab tau raug rau ultraviolet hluav taws xob. Yog li, vim qhov tshwm sim ntawm qhov kev hloov pauv no, DNA tsis tuaj yeem kho kho kom raug, ua rau muaj kev hloov pauv ntawm daim tawv nqaij thiab ua rau muaj kev txhim kho cov cim thiab cov tsos mob ntawm tus kab mob.

Yuav kho tus mob li cas

Cov kev kho mob rau xeroderma pigmentosum yuav tsum tau coj los ntawm tus kws kho tsiaj raws li hom mob txhab los ntawm tus neeg. Thaum muaj qhov mob ua paug, tus kws kho mob tuaj yeem pom zoo kom kho cov plaub hau, hloov tshuaj vitamin D thiab qee qhov kev ntsuas los tiv thaiv qhov kev hloov kho ntawm qhov mob, xws li siv tshuaj pleev thaiv hnub txhua hnub thiab siv khaub ncaws nrog lub tsho ntev thiab ntev, siv piv txwv tsom iav nrog UV tiv thaiv qhov zoo tshaj, piv txwv.

Txawm li cas los xij, nyob rau hauv cov ntaub ntawv uas muaj qhov txhab nrog cov yam ntxwv ua tsis zoo, muaj peev xwm qhia tau tias mob qog nqaij daim tawv, nws yuav tsum tau ua kev phais kom tshem tawm cov qhov txhab tshwm sim raws sijhawm, ntxiv rau kev ua haujlwm tshwj xeeb, uas yuav suav nrog kev kho tshuaj thiab / lossis kev kho hluav taws xob tom qab kev phais mob. Nkag siab txog kev kho mob qog noj ntshav.