Tham Txog Ntshav Qab Zib: Yam Koj Nco

Zoo Siab

• 1. Ntau dua kaum xyoo dhau los, kev tshawb nrhiav ntshav qab zib tau hloov pauv cov neeg mob lub neej li cas?
• Ntawm peb lub zej zog:
• 2. Cov neeg mob txog lub luag haujlwm tshawb fawb txog ntshav qab zib li cas? Lawv yuav ua txoj haujlwm dabtsi?
• Ntawm peb lub zej zog:
• 3. Peb yuav ua li cas li cas thiaj li paub zoo txog qhov teeb meem tsis muaj koom nrog kev sim tshuaj rau cov neeg mob?
• Ntawm peb lub zej zog:
• 4. Koj xav tias dab tsi cuam tshuam rau cov kev sim hauv tsev kho mob? Lawv tuaj yeem hais li cas?
• Ntawm peb lub zej zog:
• 5. Peb yuav ua li cas kev kuaj mob tsom rau cov kev xav tau ntawm cov neeg mob?
• Ntawm peb lub zej zog:
• 6. Kuv yuav ua li cas thiaj paub tias cov ntawv kho mob twg koom nrog?
• 7. Cov khoom siv dab tsi koj xav kom paub ntau ntxiv txog kev sim kho mob?
• 8. Cov ntshav qab zib pab kho kab mob ntshav qab zib yuav zoo tshaj rau koj li cas?
• Ntawm peb lub zej zog:
• 9. Koj xav tias yuav kho kev mob ntshav qab zib npaum li cas?
• Ntawm peb lub zej zog:
• 10. Dab tsi yog ib qhov koj xav kom cov neeg mob paub txog kev sim tshuaj?
• Ntawm peb lub zej zog:
• 11. Cov dab neeg loj tshaj plaws hais txog kev sim tshuaj kho mob yog dab tsi?
• Ntawm peb lub zej zog:

Lub Ib Hlis, Healthline tau koom nrog Twitter sib tham (#DiabetesTrialChat) los tham txog cov kev cov nyom uas cov neeg muaj ntshav qab zib hom 1 nkag mus rau cov kev soj ntsuam kuaj mob txhawm rau nrhiav kev kho tshiab, thiab muaj feem kho tau. Kev koom nrog hauv kev sib tham yog:

• Sarah Kerruish, tus thawj coj lub tswv yim thiab tus tub ceev xwm ntawm Antidote. (Ua raws lawv @Antidote)
• Amy Tenderich, tus tsim thiab editor-in-chief ntawm DiabetesMine. (Ua raws lawv @DiabetesMine)
• Dr. Sanjoy Dutta, lwm tus lwm thawj pab kev tsim kho ntawm kev txhais lus ntawm JDRF. (Ua raws lawv @JDRF)

Nyeem rau saib seb muaj teeb meem dab tsi, thiab cov kev daws teeb meem zoo li cas, lawv thiab peb cov zej zog zoo!

1. Ntau dua kaum xyoo dhau los, kev tshawb nrhiav ntshav qab zib tau hloov pauv cov neeg mob lub neej li cas?

Dr. Sanjoy Dutta: "Cov kev paub ntau ntxiv, qhov hnyav dua zuj zus, kev them nyiaj rov qab los ntawm kev saib xyuas cov kua nplaum txuas ntxiv (CGM), cov txiaj ntsig zoo dua uas siv cov khoom siv, thiab cov kev kuaj mob ua ntej."

Sarah Kerruish: Nws tau hloov txhua yam. Los ntawm islet hloov mus rau ib tug muaj peev xwm ua txiav: kev loj hlob tau ua tiav ... Kuv nyiam cov kab lus no los ntawm American Diabetes Association nyob rau txhua qhov kev ua tau tiav nyob rau 50 xyoo dhau los. "

Amy Tendrich: "Kev tshawb fawb tau muab rau peb CGM thiab sai sai cov neeg ua haujlwm txiav, thiab Antidote kom paub txog cov mob ntshav qab zib - zoo heev!"

Ntawm peb lub zej zog:

@everydayupsdwns: "Ntau ntawm cov tshiab gadget thiab concoctions kom luag ntxhi nyob rau hauv T1D ... Sensor augmented lub twj tso kua mis kho cov qhov muag tawm mus rau lub siab. Insulin analogues tau pab ntau yam, tab sis cov tshuaj insulin ntse zoo txaus ntseeg ”

@ ninjabetic1: "Pom tias cov kev tshawb fawb txog ntshav qab zib nce siab rau cov txheej txheem ua rau kuv cia siab tias kuv yuav muaj kev zoo siab & lub neej noj qab haus huv"

@JDRFQUEEN: “Hloov ntau ntau. Kuv thawj zaug hnav lub Guardian Medtronic CGM hauv 2007. Nws yog qhov txaus ntshai, 100-200 pts tawm. Tam sim no AP nyog. "

2. Cov neeg mob txog lub luag haujlwm tshawb fawb txog ntshav qab zib li cas? Lawv yuav ua txoj haujlwm dabtsi?

AT: “Cov neeg mob yuav tsum koom nrog ntau ntxiv hauv cov kev tshawb fawb txog lub tswv yim! Txheeb xyuas qhov tshiab VitalCrowd. Saib Anna McCollisterSlip tso tawm sib tshooj rau VitalCrowd neeg coob mob ntshav qab zib soj ntsuam kuaj mob nyob ntawm no. "

SD: "Cov neeg mob yuav tsum ua lub luag haujlwm tseem ceeb hauv kev muab kev xam pom thiab cov lus pom rau cov qauv sim thiab txiaj ntsig."

SK: “Yog! Cawv kev tsim yog qhov tseem ceeb! Lawv yuav tsum ua lub luag haujlwm loj! Cov neeg mob tuaj yeem coj lawv cov kev xav tau zoo, yog li cov neeg tshawb xyuas yuav tsum mloog zoo. "

Ntawm peb lub zej zog:

@ AtiyaHasan05: “Ua siab ncaj. Ua siab ncaj txog lawv yog dab tsi thiab tsis ua raws li kev tshawb fawb keeb kwm. "

@ ninjabetic1: "Kuv xav tias cov neeg mob khaws cov kev tshawb fawb txog ntshav qab zib nyob [nws] cov ntiv taw (nyob hauv txoj kev zoo!) - #wearenotwaiting cov haujlwm yog pov thawj ntawm qhov"

@JDRFQUEEN: "Clinicaltrials.gov [yog] pib qhov pib zoo rau cov uas nrhiav kev koom nrog kev tshawb fawb!"

3. Peb yuav ua li cas li cas thiaj li paub zoo txog qhov teeb meem tsis muaj koom nrog kev sim tshuaj rau cov neeg mob?

AT: "Kev pabcuam rau cov neeg mob ntshav qab zib thiab cov kws tshawb nrhiav, zoo li Living BioBank."

SK: “Kev Kawm! Peb tau ua peb qhov zoo tshaj plaws txhawm rau tshaj tawm lo lus - 500,000 cov neeg mob xav tau rau kev sim ntshav qab zib hauv Tebchaws Meskas, tab sis 85 feem pua ​​ntawm kev sim raug ncua lossis poob vim qhov teeb meem cuv npe. Nov yog xov xwm tsis zoo rau cov neeg mob thiab cov neeg tshawb nrhiav. ”

SD: “Peb yuav tsum ua CANDID txog txhua tus neeg mob qhov tseem ceeb. Lawv yog tus sawv cev rau cov kev sim no thiab qhov zoo tshaj ntawm txhua tus neeg muaj tus mob ntshav qab zib hom 1. Kev koom tes ua ke yog qhov tseem ceeb! Tsis txhob coj tus neeg mob mus rau kev sim siab; coj kev sim siab rau tus neeg mob. "

SK: “YOG!”

Ntawm peb lub zej zog:

@ ninjabetic1: “Hais kom HCPs qhia cov ncauj lus no zoo dua rau cov neeg mob uas tsim nyog. Kev tshawb fawb yeej tsis tau hais tawm rau kuv hauv 13.5 xyoo! ”

@ AtiyaHasan05: “Piav txog [tus txheej txheem] tiav thiab lawv txoj haujlwm tseem ceeb hauv nws. Feem ntau tsis to taub tias kev sim siab ua haujlwm li cas. "

@everydayupsdwns: “Sam xauv nees zog ntawm kev tawm! … Ntau txoj kev tshawb nrhiav raug kev txom nyem vim [lawv] nyob ntawm thaj chaw tsis tau txaus. ”

4. Koj xav tias dab tsi cuam tshuam rau cov kev sim hauv tsev kho mob? Lawv tuaj yeem hais li cas?

SK: “Nkag! Cov ntaub ntawv nws muaj rau cov kws tshawb nrhiav, tsis yog neeg mob - vim li cas peb tsim Match. Peb yuav tsum tso cov neeg mob ntawm lub chaw tshawb fawb. Dab tsi yog qhov tseem ceeb rau lawv? Dave deBronkart tau qhia peb txog qhov no. "

AT: "Tib neeg ib txwm xa email rau peb ntawm Ntshav Qab Zib Mine nug seb lawv lossis cov menyuam muaj ntshav qab zib hom 1 tuaj yeem koom nrog kev sim siab licas. Qhov twg yog qhov zoo tshaj rau xa lawv? Qhov teeb meem yog hais tias Clinicaltrials.gov yog li heev HARD mus kev. "

SD: “Kev koom nrog ncaj nraim thiab tsis ncaj yog qhov tseem ceeb, nrog rau kev sib txuas lus qhib. Kev txhawb nqa lub ecosystem ntawm cov neeg saib xyuas & HCPs. Yeej yuav muaj qhov tsis ntseeg siab ntawm kev sim siab. Qhia tawm ntawm daim duab loj dua thiab txav los ntawm kev sim-npaj ib nrab mus rau tus neeg mob-centricity.

AT: “Lub tswv yim zoo! Koj yuav qhia li cas kom lawv ua tiav qhov ntawd? ”

SD: “Kev sim kom muab cuam rau cov neeg mob cov lus. Dab tsi yuav ua rau lawv hom 1 ntshav qab zib tswj tau? Dab tsi uas lawv nyiam thiab cov kev txwv? ”

SK: “Nws yooj yim. Cov ntaub ntawv thiab nkag mus. Feem coob ntawm cov neeg tsis paub txog kev sim tshuaj. Peb tau sim kho qhov no. "

Ntawm peb lub zej zog:

@davidcragg: "Qhov tseem ceeb rau kuv yog pom kev cog lus rau tag nrho cov hau kev thiab cov txiaj ntsig tau hais qhia tsis hais yam tshwm sim los."

@gwsuperfan: “Ntau cov neeg koom rau kev sim yuav ua rau muaj kev koom tes ntxiv. Ib qho xav kom kuv nyob hauv ib qho chaw [tshaj li 2 lub lim tiam] ... Tsis yog qhov tseeb rau [tus neeg muaj ntshav qab zib] nrog txoj haujlwm / tsev kawm ntawv / lub neej. "

@everydayupsdwns: “Nyob ntawm tus qauv siv mus sib hais. Puas yog qee qhov ... Kuv tau muaj kev koom tes ntau zaus, thiab tau kos npe los nrhiav "pom" tab sis tsuas yog nrhiav los ntawm tus kheej lub tsev kho mob. "

@lawahlstorm: “Kev hla dhau kev nkag siab tsis meej txog kev koom tes nrog kev sim. Txoj kev poob txiaj ntsig “Guinea npua”.

@ ninjabetic1: “Sijhawm: Kuv xav tau sijhawm ntau npaum licas? Cov txiaj ntsig tau: peb yuav pom cov txiaj ntsig? Yuav tsum muaj: koj xav tau dab tsi los ntawm kuv? ”

5. Peb yuav ua li cas kev kuaj mob tsom rau cov kev xav tau ntawm cov neeg mob?

SD: "Txo cov txheej txheem ua haujlwm nyuaj, thiab cov neeg mob xav tau tiag tiag yuav tsum tsim thaum txiav txim siab tsim khoom."

SK: “Tsim qauv nrog cov neeg mob hauv siab! Cov kws tshawb nrhiav yuav tsum xav zoo ib yam li cov neeg mob thiab paub meej tias nws yooj yim rau kev koom tes hauv kev sim siab. Thiab tsis txhob ntshai nug! Cov neeg mob yuav tsum paub qhov twg yog qhov zoo tshaj rau cov neeg mob, thiab cov kws tshawb nrhiav yuav tsum siv qhov zoo ntawm. ”

AT: "Tsis tas li, peb xav tau qee yam xws li Kev Tshawb Fawb Txog Kev Mob Ntshav Qab Zib txhawm rau txhawm rau soj qab qhov koj sim ua tiav."

Ntawm peb lub zej zog:

@lwahlstrom: "Koom nrog cov neeg mob hauv txhua theem ntawm kev sim kev tsim - dhau ntawm 'kev sim kev sim. Lub zej zog kev tawm tswv yim yog qhov tseem ceeb!"

@ ninjabetic1: “Khiav ntau tweet chats li no. Tsom pawg. Nyeem blogs. Tham nrog peb. Mus dhau HCPs mus cuag cov neeg mob ”

@JDRFQUEEN: "Thiab tsis yog qhov ib qho yuav tsum tau them qhov kev xav tau hnyav, tab sis kev them nyiaj rov qab rau lub sijhawm thiab roj yog qhov kev txhawb siab rau cov neeg koom nrog."

6. Kuv yuav ua li cas thiaj paub tias cov ntawv kho mob twg koom nrog?

SD: "Kev sib txuas ntawm kev tshawb fawb tus kheej thiab lub tswv yim ntawm koj tus kws kho mob."

SK: "Tshawb xyuas peb lub cuab yeej tshiab - teb ob peb nqe lus nug thiab peb lub kaw lus yuav pom kev sim siab rau koj!"

7. Cov khoom siv dab tsi koj xav kom paub ntau ntxiv txog kev sim kho mob?

SD: “Clinicaltrials.gov, thiab JRDF.org”

SK: “Peb cov phooj ywg CISCRP muaj ntau yam zoo. Thiab cov zej zog muaj ntshav qab zib online yog txoj hauv kev zoo los kawm txog cov kev paub ntawm tus kheej. ”

8. Cov ntshav qab zib pab kho kab mob ntshav qab zib yuav zoo tshaj rau koj li cas?

SK: “Muaj coob! Kuv tabtom ua rau kuv xav paub ntau tshaj los ntawm kev dag txiav - xav txog ntau tus neeg lub neej yuav raug pauv. Kuv kuj tseem xav tshawb fawb tshiab txog kev xa cov qia hlwb mus ua cov kab mob hlwb pancreatic - zoo li kev nce qib loj! "

AT: “Tiag. Cov neeg mob thiab cov kws khomob tau nug txog [peb] kab mob ntshav qab zib thiab tshuaj maj hais tias COV TUB NTXHAIS KAWM NTAWV. Peb zoo siab txog cov kev tshawb fawb uas yuav ua rau CGM hloov cov ntiv tes. "

SD: "Kev siv tshuab ua kom zoo li kab mob ua paug, hloov chaw (hloov ntawm tes), tshuaj ntsuam kab mob hauv lub raum ... Cov tshuaj tshiab rau kev tswj ntshav qabzib zoo dua, kev sim tshuaj los khaws cov beta cell ua haujlwm."

SK: "Ob qhov loj, cog lus tias kev mob siab rau kev sim txiav tawm los xyoo 2016 dhau los ntawm Harvard Research thiab UVA Lub Tsev Kawm Ntawv ntawm Tshuaj."

Ntawm peb lub zej zog:

@OceanTragic: "OpenAPS kom paub meej"

@ NanoBanano24: “AP zoo nkaus li ze heev! Zoo siab heev txog qhov ntawd. ”

9. Koj xav tias yuav kho kev mob ntshav qab zib npaum li cas?

SK: "Kuv tsis paub tias yuav ze li cas, tab sis tsuas yog nag hmo xwb, cov xov xwm no ua rau kuv muaj kev cia siab."

Ntawm peb lub zej zog:

@delphinecraig: "Kuv xav tias peb tseem muaj txoj kev mus ntev rau kev kho tau."

@davidcragg: “Tsis nyob hauv kuv lub neej. Ntau ntawm cov xov xwm hype txog kev kho mob nyob ib puag ncig yog hais txog kev nqis peev rau cov kev tshawb fawb ”

@Mrs_Nichola_D: “10 xyoo? Tso dag lwm tus, Kuv tsis paub. Tab sis tsis yog ceev npaum li uas kuv xav kom ua li ntawd. "

@ NanoBanano24: "Los ze zog dua puas tau! Kuv muaj hnub nyoog 28, tsis paub meej nws yog hauv kuv lub neej. AP zoo heev yuav nyob ib ncig ntawm 10 xyoo. Ceev faj optimist. ”

@d Kiab Qab Zib: “Hais rau 38yrs tias [ntshav qab zib] yuav kho zoo nyob rau 5 txog 10 xyoo. Kuv xav tau tsis yog kev kwv yees ”

10. Dab tsi yog ib qhov koj xav kom cov neeg mob paub txog kev sim tshuaj?

SD: "Kuv xav kom cov neeg mob paub tias lawv tseem ceeb npaum li cas tiag ... Cov neeg mob yog cov kws ua haujlwm hauv thiab cov thawj coj ntawm txoj kev mus rau qhov zoo dua rau cov neeg uas muaj ntshav qab zib hom 1."

SK: "Feem ntau, kuv teb cov lus nug txog kev sim cov nyom - cov neeg mob tuaj rau peb thaum lawv tab tom daig, thiab peb pab lawv nrhiav kev sim siab. Peb muaj ib pab neeg ua tau zoo heev uas tuaj yeem pab koj nrhiav kom sim ntshav qab zib. Peb sau txhua yam kev sim siab, yog li tsis muaj kev tsis ncaj ncees. "

Ntawm peb lub zej zog:

@lwahlstrom: “80% tau nkag rau hauv kev tiv thaiv kev cuam tshuam tseem ceeb & txhua tus neeg tuaj koom tau txais cov feeb. cov qauv kev saib xyuas. ”

11. Cov dab neeg loj tshaj plaws hais txog kev sim tshuaj kho mob yog dab tsi?

AT: "Kuv hais tias lub tswvyim hais ua dabneeg loj tshaj plaws yog kev sim ntshav qab zib tsuas yog qhib rau cov neeg tseem ceeb thiab tsis muaj kev nkag siab tau rau txhua tus. Peb yuav tsum tshaj tawm cov lus! ”

SD: “Tawm zoo rau kev noj qab haus huv hais txog qhov kev sim saib xyuas zoo li cas thiab tsis yog qhov tseem ceeb. Qee qhov cynics hnov ​​tias cov neeg mob cov tsiaj sib luag sib luag. Qhov ntawd tsis tseeb. Cov kws paub tawm tswv yim yuav xav tias txhua qhov kev sim tawm sib luag nrog txoj kev kho. Qhov ntawd tseem tsis tseeb. Ntsuas kev tshawb fawb, kev cia siab thiab kev cia siab yog qhov kev sim kho mob tshawb pom tau. ”

Ntawm peb lub zej zog:

@davidcragg: "Cov tswvyim hais ua dab tsi loj tshaj yog tias txhua qhov kev sim tshuaj tau zoo tsim & cov ntaub ntawv yeej ib txwm luam tawm-feem ntau tsis tshaj tawm ua cov tswv yim ua tsis muaj nqis ...

@delphinecraig: “Kuv xav tias myths xwb. tsis them nyiaj, tsis yooj yim txog tshuaj / tsev kuaj mob / tsev kho mob, raug nqi rau cov neeg koom nrog. "

@JDRFQUEEN: “'Messing up' xav tau. Koj ib txwm muaj cai thim tawm yog tias koj txoj kev tswj hwm tau mob. "

Ua tsaug rau txhua leej txhua tus uas koom! Yog xav paub txog cov xwm txheej yuav tshwm sim hauv Twitter, ua raws li peb @Healthline!