7 Cov Lus Nug Yuav Tau Nug Thaum Xav Txog Kev Kho Mob rau IPF

Zoo Siab

• 1. Kuv yuav paub tau li cas yog tias kuv li IPF kev ua haujlwm tsis zoo?
• 2. Cov tshuaj twg kho IPF?
• 3. Kev kho pa oxygen puas tuaj yeem pab kuv ua pa zoo dua?
• 4. Puas muaj kev pabcuam kho kom rov zoo?
• 5. Kuv puas yuav tau hloov lub ntsws?
• 6. Puas muaj lwm txoj hauv kev kho tau lwm yam thiab?
• 7. Qhov zoo thiab kev pom zoo ntawm kev kho IPF yog dab tsi?

Idiopathic pulmonary fibrosis (IPF) yog ib hom kab mob ntsws uas tsis paub tias muaj yam dab tsi. Txawm hais tias nws qhov kev loj hlob tag nrho qeeb qeeb, nws tuaj yeem ua rau cov kev mob tshwm sim sai dua thaum cov neeg ua rau npau taws.

Muab ob qho tseeb no, koj yuav xav paub seb puas muaj kev kho mob yog tias koj tus kws kho mob tsis paub tias dab tsi ua rau koj li IPF pib. Tej zaum koj tseem yuav xav tias kev kho yog nws tsim nyog.

Khaws cov lus qhia txog kev kho mob hauv qab no cia rau hauv siab los sab laj txog kev teem sijhawm sib tham nrog koj tus kws kho mob.

1. Kuv yuav paub tau li cas yog tias kuv li IPF kev ua haujlwm tsis zoo?

Cov paib ntawm IPF uas nquag muaj ua tsis taus pa, kuj tseem hu ua dyspnea. Ua pa luv tej zaum zoo li tuaj tawm qhov twg thiab feem ntau yuam kev rau lwm tus mob ntsws. Tej zaum koj yuav muaj nws thaum lub sijhawm ua si, thiab sijhawm, dhau sijhawm so. Qhov hnoos qhuav yuav nrog ua pa.

Koj li IPF kuj tseem tuaj yeem ua rau lwm cov tsos mob, xws li poob phaus, mob nqaij, thiab nkees. Koj tuaj yeem pom tias koj cov ntiv tes thiab ntiv taw pib puag ncig ntawm cov lus qhia, cov tsos mob hu ua clubbing.

Cov tsos mob ntawm IPF sib txawv ntawm ib tus neeg mus rau lwm tus. Yog koj pom tias ua pa nyuaj uas ua rau mob ntxiv, nrog rau qhov pib ntawm cov tsos mob ntxiv, qhov no yuav yog qhov qhia tias koj tus mob hnyav zuj zus. Sib tham txog koj cov kev kho mob nrog koj tus kws kho mob.

2. Cov tshuaj twg kho IPF?

Hmoov tsis zoo, tsis muaj tshuaj los kho IPF. Hloov chaw, tshuaj siv yog siv los txo cov kev vam meej ntawm IPF cov tsos mob. Nyeg, koj kuj yuav muaj lub neej zoo dua.

Muaj ob lub tshuaj uas tau pom zoo los ntawm Asmeskas Cov Khoom Noj thiab Tshuaj (FDA) rau kev kho mob ntawm IPF: nintedanib (Ofev) thiab pirfenidone (Esbriet). Paub ua cov tshuaj tua kab mob antifibrotic, cov tshuaj no txo ​​cov qhab nia txaus hauv koj lub ntsws. Qhov no tuaj yeem pab ua kom qhov nce qib ntawm IPF thiab txhim kho koj cov tsos mob ib yam nkaus.

Txuas ntxiv, koj tus kws kho mob yuav sau ntawv rau ib lossis ntau hom tshuaj nram qab no:

• acid reflux noj tshuaj, tshwj xeeb yog tias koj muaj mob plab hnyuv plab (GERD)
• tshuaj tua kab mob los tiv thaiv kab mob
• anti-inflammatory tshuaj, xws li prednisone
• cov tshuaj tiv thaiv hnoos, xws li benzonatate, hydrocodone, thiab thalidomide

3. Kev kho pa oxygen puas tuaj yeem pab kuv ua pa zoo dua?

Kev kho mob oxygen yog qhov muaj peev xwm kho tau rau ntau tus neeg nrog IPF. Nws tuaj yeem pab koj ua pa zoo dua thaum koj taug kev, khw, lossis koom nrog lwm yam. Raws li IPF hloov zuj zus, koj yuav xav tau kev kho oxygen thaum lub sijhawm pw kom pab koj ua pa zoo dua.

Kev kho cov pa oxygen tsis tuaj yeem txwv tsis pub muaj IPF, tab sis nws tuaj yeem:

• ua kom yooj yim kom tawm dag zog
• pab kom koj tsaug zog thiab pw tsaug zog
• tswj koj cov ntshav siab

4. Puas muaj kev pabcuam kho kom rov zoo?

Yog lawm. Rau IPF, koj yuav raug xa mus rau kev pab cuam kho mob ntsws ntsig. Koj tuaj yeem xav txog qhov no raws li kev kho mob ua haujlwm lossis kev kho lub cev, tshwj tsis yog lub ntsiab yog nyob ntawm koj lub ntsws.

Nrog kev rov kho kabmob ntsws, koj tus kws khomob yuav pab koj:

• cov pa ua pa
• kev pab txhawb nqa
• ce thiab kev ua siab ntev
• kev noj haus

5. Kuv puas yuav tau hloov lub ntsws?

Yog tias koj muaj qhov ntau ntawm kev mob ntsws, koj yuav tau txais txiaj ntsig los ntawm lub ntsws hloov. Yog tias ua tiav, qhov kev phais mob tseem tuaj yeem pab koj nyob ntev dua. Raws li Pulmonary Fibrosis Foundation, mob ntsws ntsig txog li ib nrab ntawm txhua lub ntsws mob ntsws hauv Tebchaws Meskas.

Tseem, muaj txoj kev pheej hmoo txaus ntshai cuam tshuam nrog kev mob ntsws, yog li nws tsis yog rau txhua tus neeg. Qhov kev txhawj xeeb loj tshaj plaws yog kev tsis lees txais cov ntshav tshiab. Kev kis tau tus mob kuj ua tau.

Tham nrog koj tus kws kho mob yog tias koj xav paub txog kev hloov cov ntsws thiab yog ib qho zoo rau koj.

6. Puas muaj lwm txoj hauv kev kho tau lwm yam thiab?

Lwm txoj kev kho mob tsis tau txais kev txhawb nqa zoo rau IPF kev tswj hwm. Tseem, kev kho mob hauv tsev thiab kev hloov pauv hauv lub neej tuaj yeem pab koj qhov kev noj qab haus huv txhua yam.

Tham nrog koj tus kws kho mob txog:

• kev tawm dag zog
• kev txhawb nqa zoo
• txiav luam yeeb
• noj cov vitamins, yog tias xav tau
• txhaj tshuaj tiv thaiv

Koj tus kws kho mob kuj tseem yuav qhia koj mus yuav tshuaj siv thiab tshuaj los kho koj tus mob. Piv txwv li cov tshuaj hnoos, tshuaj hnoos, thiab tshuaj kho mob. Yuav tsum nrog koj tus kws kho mob tham ua ntej noj cov tshuaj OTC txhawm rau tiv thaiv kev phiv los sis fab tshuaj thiab kev cuam tshuam cov tshuaj.

7. Qhov zoo thiab kev pom zoo ntawm kev kho IPF yog dab tsi?

Vim tias nws tsis muaj tshuaj rau IPF, koj tus kws kho mob yuav tsom rau kev tswj hwm thiab kho mob kom ntev koj lub neej. Qhov no tseem yuav pab txhim kho koj lub neej kom zoo thiab tiv thaiv kom tsis txhob muaj teeb meem, xws li kis tau tus mob.

Txawm hais tias IPF tuaj yeem cuam tshuam dhau los, nws yog ib qho tseem ceeb kom tsis txhob tsum. Kho tus IPF tuaj yeem ua rau koj cov haujlwm txhua hnub lom zem dua. Koj tus kws kho mob tseem yuav hais kom koj koom nrog kev sim tshuaj, uas tuaj yeem ua rau koj tau txais kev kho mob tshiab.

Qhov kev pom zoo rau IPF kev kho mob yog cov tshuaj phiv tuaj yeem hloov kho tau thiab muaj peev xwm tsis lees paub los ntawm kev hloov ntsws.

Thaum xav txog qhov zoo thiab qhov tsis zoo ntawm kev kho mob, koj yuav pom tias cov txiaj ntsig tau deb dhau ntawm qhov txaus ntshai. Koj thiab koj tus kws kho mob tuaj yeem txiav txim siab qhov twg yog qhov zoo rau koj tus kheej.