Polycythemia Vera: Kev twv thiab lub neej kev cia siab

Zoo Siab

• Nkag siab txog PV
• Tswj kev tswj hwm PV
• Kev Tswj Xyuas PV
• Outlook rau PV

Polycythemia vera (PV) yog ib yam mob ntshav tsawg. Thaum tsis muaj kev kho rau PV, nws tuaj yeem tswj tau los ntawm kev kho mob, thiab koj tuaj yeem nyob nrog tus kabmob no tau ntau xyoo.

Nkag siab txog PV

PV tshwm sim los ntawm kev hloov pauv lossis txawv txav hauv cov caj ces ntawm cov qia hlwb hauv koj cov hlwb pob txha. PV ua rau koj cov ntshav tuab los ntawm kev tsim cov qe ntshav liab ntau heev, uas tuaj yeem thaiv cov ntshav kev mus rau cov nruab nrog cev thiab cov nqaij mos.

Qhov tseeb yog vim li cas PV tsis paub, tab sis ntawm tib neeg uas muaj tus kab mob no tseem muaj qhov hloov hauv JAK2 noob. Kev kuaj ntshav tuaj yeem kuaj pom kev sib hloov.

PV pom feem ntau rau cov neeg laus. Nws tsis tshua muaj tshwm sim hauv ib tus neeg uas muaj hnub nyoog qis dua 20 xyoo.

Kwv yees li 2 leeg ntawm txhua 100,000 tus tib neeg muaj kev cuam tshuam los ntawm tus kab mob. Ntawm cov tib neeg no, yuav txuas ntxiv txhim kho cov kev mob mus sij hawm ntev xws li mob myelofibrosis (mob pob txha caj dab) thiab mob qog ntshav.

Tswj kev tswj hwm PV

Lub hom phiaj tseem ceeb ntawm kev kho mob yog los tswj koj cov ntshav. Txo cov qe ntshav liab tau pab tiv thaiv cov ntshav txhaws uas tuaj yeem ua rau mob stroke, lub plawv nres lossis lwm yam khoom hauv lub cev puas. Nws kuj tseem tuaj yeem txhais tau tias yog tswj cov qe ntshav dawb thiab ntshav qab zib. Tib txoj kev ua dhau los ua kom pom cov kev ua haujlwm ntawm cov qe ntshav liab zoo li tseem muaj lub cim ntsuas kev ua haujlwm ntawm cov qe ntshav dawb thiab qe ntshav. Cov kab mob ntshav siab hauv lub cev, tsis hais txog hom ntshav twg, ua kom cov ntshav txhaws thiab lwm yam teeb meem ntxiv.

Lub sijhawm kho mob, koj tus kws kho mob yuav tsum saib xyuas koj tsis tu ncua kom saib tus mob thrombosis. Qhov no tshwm sim thaum cov ntshav txhaws hauv cov leeg ntshav lossis hlab ntsha thiab cuam tshuam qhov ntshav ntws mus rau koj lub plab lossis cov nqaij tawv loj.

Cov teeb meem mob ncua ntev ntawm PV yog myelofibrosis. Qhov no tshwm sim thaum koj cov hlwb pob txha muaj caws pliav thiab tsis tuaj yeem tsim cov hlwb zoo uas ua haujlwm zoo. Koj thiab koj hematologist (tus kws kho mob hauv cov ntshav tsis tuaj yeem) tuaj yeem sib tham txog kev hloov hlwb pob txha nyob ntawm koj kis.

Leukemia yog lwm qhov kev mob ncua ntev ntawm PV. Tshwj xeeb, ob qho tib si mob myeloid kab mob ntshav siab (AML) thiab mob lymphoblastic leukemia (TXHUA) cuam tshuam nrog polycythemia vera. AML yeej muaj ntau dua. Tej zaum koj yuav xav tau kev kho mob tshwj xeeb uas tseem tsom rau kev tswj hwm ntshav yog tias qhov mob tshwm sim no.

Kev Tswj Xyuas PV

PV yog qhov tsis tshua muaj, yog li kev soj ntsuam thiab kev kuaj xyuas tas li yog qhov tseem ceeb. Thaum koj kuaj pom thawj zaug, koj yuav xav nrhiav tus kws kho ntshav tawm ntawm lub tsev kho mob loj. Cov kws paub txog ntshav no yuav paub ntau ntxiv txog PV. Thiab lawv yeej tau npaj kev saib xyuas rau qee tus neeg uas muaj tus kabmob.

Outlook rau PV

Thaum koj pom tus kws kuaj ntshav, ua haujlwm nrog lawv kom teem sijhawm. Koj lub sijhawm teem sijhawm raws li kev vam meej ntawm koj li PV. Tab sis koj yuav tsum xav tias yuav ntsib koj cov kws kho hematologist txog ib hlis ib zaug mus rau ib zaug txhua peb lub hlis nyob ntawm seb cov ntshav muaj pes tsawg xyoo, hnub nyoog, kev noj qab haus huv tag nrho, thiab lwm cov tsos mob.

Kev tshuaj xyuas thiab kev kho mob tsis tu ncua tuaj yeem pab koj lub neej kom siab dua qub thiab txhim kho koj lub neej tag nrho. Raws li ntau yam ntawm cov xwm txheej, qhov kev cia siab lub neej tam sim no tau qhia los ntawm lub sijhawm ntawm kev txheeb xyuas. Lub hnub nyoog, tag nrho kev noj qab haus huv, cov kab mob ntshav hauv lub cev, teb rau kev kho, noob caj noob ces, thiab kev xaiv lub neej, xws li kev haus luam yeeb, txhua tus muaj feem cuam tshuam hauv chav kawm ntawm tus kabmob thiab nws txoj kev xav pom ntev ntev.