Kuv Thawj Xyoo nrog MS

Zoo Siab

• Marie Robidoux
• Janet Perry
• Doug Ankerman
• Cov nqa mus

Kawm paub koj muaj ntau tus kab mob sclerosis (MS) tuaj yeem ua rau nthwv dej ntawm txoj kev xav. Thaum xub thawj, koj yuav kaj siab tias koj paub tias dab tsi ua rau koj tus mob. Tab sis tom qab ntawd, kev xav ntawm kev xiam oob khab thiab siv lub rooj zaum muaj log yuav ua rau koj muaj kev ntxhov siab txog yav tom ntej.

Nyeem yuav ua li cas peb tus neeg nrog MS tau dhau los ntawm lawv thawj xyoo thiab tseem ua lub neej noj qab haus huv, muaj lub neej zoo.

Marie Robidoux

Marie Robidoux yog 17 thaum nws kuaj pom MS, tab sis nws niam thiab txiv thiab kws kho mob cia nws tsis pub leejtwg paub mus txog thaum nws lub hnub nyoog 18 xyoo. Nws chim thiab npau taws.

Nws hais tias, "Kuv nyuaj siab thaum kuv paub tias kuv muaj MS," nws hais. “Nws siv ntau xyoo rau kuv kom xis nyob txaus qhia txhua tus tias kuv muaj MS. Nws zoo li nws txoj kev xav phem. [Nws xav tias] zoo li kuv yog tus neeg tsis nyiam, lwm tus nyob deb ntawm, kom tsis txhob muaj. "

Ib yam li lwm tus, nws thawj xyoo nyuaj.

Nws tau hais tias "Kuv tau siv ntau lub hlis pom ob npaug, feem ntau yog kev siv kuv ob txhais ceg, muaj teeb meem sib npaug, tag nrho thaum tab tom sim mus kawm ntawv qib siab,"

Vim tias Robidoux tsis muaj kev cia siab txog tus kabmob, nws xav tias nws yog "lub txim tuag." Nws xav tias, ntawm qhov zoo tshaj plaws, nws yuav mus rau qhov chaw zov me nyuam, siv lub rooj zaum muaj log, thiab ua tiav tag rau lwm tus.

Nws xav tias nws tau paub tias MS cuam tshuam rau txhua tus neeg sib txawv. Niaj hnub no, nws tsuas yog qee qhov txwv ntawm nws qhov kev mus ncig, siv tus pas nrig lossis khawm tes los pab nws taug kev, thiab nws tseem ua haujlwm tas hnub.

Nws hais tias, "Kuv tuaj yeem hloov kho qee zaum, txawm hais tias kuv tus kheej, kho txhua pob nkhaus uas kuv tau pom," MS hais. "Kuv txaus siab rau lub neej thiab txaus siab rau qhov kuv ua tau thaum kuv tuaj yeem ua tau."

Janet Perry

Janet Perry hais tias "Rau feem ntau ntawm cov neeg nrog MS, muaj cov paib, feem ntau tsis quav ntsej, tab sis cov paib qhia ua ntej," Janet Perry hais. "Rau kuv, muaj ib hnub kuv nyob zoo, thaum ntawd kuv ua ib tug tsis mloog lus, zuj zus, thiab nyob hauv tsev kho mob li tsib hnub."

Nws thawj qhov tsos mob yog mob taub hau, tom qab ntawd kiv taub hau. Tus poj niam nws pib khiav mus rau phab ntsa, thiab pom ob lub zeem muag, tshuav nyiaj tsis zoo, thiab nws loog ntawm nws sab laug. Nws pom nws tus kheej quaj thiab nyob rau hauv lub xeev ntawm kev npau taws rau tus cwj pwm tsis muaj laj thawj.

Txawm li cas los xij, thaum kuaj pom tias, nws qhov kev xav tau zoo li mob siab. Cov kws kho mob tau xav yav dhau los nws thawj zaug MS nres yog mob stroke.

Nws hais tias, "Tsis yog lub txim tuag; “Nws tuaj yeem kho tau. Kuv tuaj yeem nyob tau yam tsis muaj kev hem thawj ntawm kuv. ”

Yog lawm, txoj kev ua ntej tsis tau yooj yim. Perry yuav tsum rov taug kev, taug kev nce ntaiv, thiab yuav ua li cas tig nws lub taub hau yam tsis muaj teeb taws hlo li.

Nws tau hais tias "Kuv tau nkees ntau dua li lwm yam nrog kev sib zog ua txhua yam," nws hais. “Koj tsis tuaj yeem tsis quav ntsej tej yam uas tsis ua haujlwm lossis tsuas yog ua haujlwm yog tias koj xav txog lawv. Qhov no yuam koj yuav tsum paub thiab nyob rau lub sijhawm. ”

Nws kawm paub kom muaj lub siab xav, xav txog tias nws lub cev ua tau dab tsi thiab ua tsis tau.

Nws hais tias, "MS yog tus kab mob whimsical thiab vim tias kev tawm tsam tsis tuaj yeem kwv yees tau, nws ua rau muaj kev nkag siab zoo rau kev npaj ua ntej," nws hais.

Doug Ankerman

"Kev xav ntawm MS tau noj kuv," hais tias Doug Ankerman. "Rau kuv, MS ua phem rau kuv lub taub hau dua kuv lub cev."

Ankerman thawj tus kws kho mob xav tias MS tom qab nws yws yws ntawm nws sab tes thiab nruj ntawm nws sab xis. Tshaj tag nrho, cov tsos mob no tau nyob zoo nkauj thaum nws thawj xyoo, uas tso cai rau nws mus nkaum ntawm tus kabmob.

Nws hais tias "Kuv tsis tau qhia kuv niam kuv txiv li rau lub hlis," “Thaum mus xyuas lawv, Kuv nkag mus hauv chav da dej kom tua kuv ib zaug ib zaug. Kuv ntsia zoo, yog vim li cas ho qhia xov xwm? ”

Saib tom qab, Ankerman paub tias tsis lees paub nws txoj kev kuaj mob, thiab "thawb nws mus rau hauv chav da dej," yog qhov yuam kev.

Nws tau hais tias "Kuv xav tias kuv plam tsib lossis rau xyoo ntawm kuv lub neej ua si qhov tsis lees paub," nws hais.

Lub sijhawm 18 xyoo dhau los, nws tus mob tau maj mam poob qis. Nws siv ntau pab, nrog rau cov canes, tes tuav, thiab lub laub siv mus ncig. Tab sis nws tsis cia ua kom cov kev dai no ua rau nws qeeb.

Nws tau hais tias "Kuv tam sim no nrog kuv MS ua rau kuv ntshai kuv thaum kuv kuaj pom thawj zaug, thiab kuv paub tias nws tsis phem," nws hais. "Kuv zoo tshaj li ntau nrog MS thiab Kuv zoo siab."

Cov nqa mus

Thaum MS cuam tshuam rau txhua tus neeg sib txawv, ntau tus muaj kev tawm tsam thiab kev ntshai zoo hauv thawj xyoo tom qab kuaj pom. Nws tuaj yeem nyuaj rau tuaj nrog koj txoj kev kuaj mob thiab kawm paub yuav ua li cas hloov mus rau lub neej nrog MS. Tab sis peb tus neeg no tau ua pov thawj tias koj tuaj yeem mus dhau ntawd thawj qhov tsis paub tseeb thiab txhawj xeeb, thiab dhau qhov koj xav tau rau lub neej yav tom ntej.