Nkag siab txog Polycythemia Vera thiab Nws Kho Li Cas

Zoo Siab

• Cov tsos mob tshwm sim ntawm polycythemia vera
• Vim li cas polycythemia vera yuav tsum tau tswj hwm?
• Kev kho mob polycythemia vera
• Kuv yuav paub tau li cas yog tias txoj kev kho mob ua haujlwm?
• Cov nqa mus

Polycythemia vera (PV) yog ib qho tsis tshua muaj ntshav mob qog ntshav uas cov hlwb pob txha ua rau cov ntshav muaj ntshav ntau heev. Cov qe ntshav liab ntxiv ua rau cov ntshav tuab thiab ntxiv kom ntshav khov.

Tamsis no tsis muaj txoj kev kho rau PV, tabsis kev kho mob tuaj yeem pab tiv thaiv kom tsis txhob mob nyhav ntxiv thiab kho cov tsos mob.

Koj tus kws kho mob yuav teem sijhawm mus ntsib thiab kuaj mob raws sijhawm kom saib xyuas koj li kev noj qab haus huv. Nws yog ib qho tseem ceeb kom kuaj xyuas nrog koj pab neeg tu tus mob kom lawv paub tias koj xav li cas.

Nyeem rau xyuas kom paub ntxiv txog yuav ua li cas PV yog tswj, thiab yuav ua li cas paub tias kev kho mob puas ua haujlwm.

Cov tsos mob tshwm sim ntawm polycythemia vera

PV nyhav yuav pom los ntawm cov ntshav ua haujlwm ntau dua li muaj cov tsos mob. Ntau tus tsos mob ntawm PV muaj lwm cov laj thawj, yog li lawv tsis yog txhua tus chij liab lawv tus kheej. Tham nrog koj tus kws kho mob yog tias koj pom muaj qhov hloov dab tsi hauv koj lub siab.

Yog koj muaj tsos mob, koj yuav muaj:

• zoo nkaus li qaug zog lossis tsis muaj zog
• mob taub hau
• kiv taub hau
• coov hauv pob ntseg (tinnitus)
• tawv nqaij liab
• teeb meem tsis pom kev, tsis hais cov dig muag lossis dig muag
• khaus tawv, tshwj xeeb yog tom qab da dej kub lossis da dej
• mob plab los yog zoo nkaus tag nrho (tshwm sim los ntawm tus tsiaj mob loj)
• mob hauv siab
• mob pob qij txha los yog o

Vim li cas polycythemia vera yuav tsum tau tswj hwm?

Tshaj cov ntshav hauv cov ntshav hauv PV ua rau cov ntshav tuab thiab feem ntau yuav txhaws. Qhov no tej zaum yuav ua rau muaj kev phom sij rau lub plawv nres, mob hlab ntsha tawg, lossis hlab ntsws txhaws ua rau txoj hlab ntshav sib luag.

Thaum PV tsis tuaj yeem kho tau, tsis tau txhais tau tias nws tsis tuaj yeem tswj tau ntev ntev. Kev kho PV txhawm rau txo cov tsos mob thiab txo qhov kev pheej hmoo ntawm cov teeb meem ntsig txog ntshav txhaws los ntawm kev txo qis ntawm cov qe ntshav.

Kev kho mob polycythemia vera

Koj pawg neeg saib xyuas kev noj qab haus huv yuav sib tham txog kev kho mob zoo tshaj plaws rau koj li PV nyob ntawm seb koj cov ntshav thiab cov tsos mob zoo li cas.

Koj tus kws kho mob tuaj yeem sau tshuaj rau:

• nyias cov ntshav
• tiv thaiv kom txhob muaj teeb meem
• tswj cov tsos mob

Nws tseem ceeb heev uas yuav tau noj tshuaj raws nraim li qhia.

Cov kev kho mob hauv qab no feem ntau siv los kho PV:

• Phlebotomy, lossis tshem tawm cov ntshav tawm ntawm lub cev, ib ntus txo qhov kev nkag siab ntawm cov qe ntshav liab thiab koj cov ntshav.
• Kev siv tshuaj tsawg tsawg li tshuaj aspirin pab txo koj cov ntshav.
• Anagrelide (Agrylin) txo cov platelets hauv koj cov ntshav, uas ua kom ntshav ntog tsawg.
• Cov tshuaj antihistamines kho cov tawv nqaij khaus khaus, ib qho PV cov tsos mob.
• Myelosuppressive tshuaj kho mob zoo li hydroxyurea txo cov qe ntshav tsim hauv cov hlwb pob txha.
• Ruxolitinib (Jakafi) tuaj yeem pab yog tias koj lub PV tsis teb rau hydroxyurea, lossis yog tias koj muaj kev cuam tshuam ib nrab lossis qhov txaus ntshai rau myelofibrosis.
• Tshuaj interferon alfa txo kev tsim cov qe ntshav ntau tab sis tsis tshua tau raug sau tseg, vim nws zoo li ua rau muaj kev phiv ntau dua li lwm txoj kev kho mob.
• Kev kho lub teeb siv psoralen thiab ultraviolet lub teeb tuaj yeem pab ua kom khaus khaus txuas nrog rau PV.
• Hloov cev pob txha qee zaum siv los txo cov qe ntshav hauv cov hlwb pob txha.

Kuv yuav paub tau li cas yog tias txoj kev kho mob ua haujlwm?

PV yog tus kab mob ntev ntev uas tuaj yeem ua tiav zoo rau ntau xyoo. Ua haujlwm nrog koj pab neeg tu tus mob kom lawv paub txog cov kev hloov hauv koj li kev noj qab haus huv yog li lawv tuaj yeem hloov kho koj txoj kev npaj khomob raws li qhov xav tau.

Tswj hwm PV xav kom mus ntsib nrog kws kho mob qog noj ntshav tshwj xeeb (kws kho keeb kwm) thiab tus kws kho mob ntshav (hematologist). Cov kws kho mob no yuav tshuaj xyuas koj cov qe ntshav nyob kom qis kom thiaj li paub txiav txim siab txog kev kho mob.

Nco ntsoov qhia koj cov neeg muab kev pab kho mob paub yog tias koj muaj cov tsos mob tshiab, xws li mob plab los yog o.

Koj cov kev kho mob tam sim no yuav tsis ua haujlwm yog tias lawv tsis hais txog cov tsos mob, lossis yog tias ntshav ua haujlwm pom tias cov qe ntshav tsis sib txawv.

Hauv qhov no, koj tus kws kho mob tuaj yeem hloov kho koj lub phiaj xwm kho mob PV. Qhov no yuav koom nrog hloov qhov tshuaj ntawm koj cov tshuaj lossis sim ua ib qho kev kho mob tshiab.

Cov nqa mus

Polycythemia vera (PV) yog ib hom mob cancer ntshav uas tuaj yeem ua kom ntshav nce siab thiab txhawm rau txhaws. Kev ua tib zoo saib xyuas thiab kev tswj hwm tuaj yeem txo cov tsos mob thiab qhov pheej hmoo txaus ntshai.

Kev tswj hwm rau PV suav nrog kev ua haujlwm tsis tu ncua ntshav, thiab yuav suav nrog tshuaj noj thiab phlebotomy. Sib txuas nrog koj pab neeg tu tus mob thiab ua raws li koj cov phiaj xwm kho mob kom koj xav tias zoo tshaj plaws.

Qhov chaw: