Thawj Qhov Kawm Tau Hnyav MS yog dab tsi?

Zoo Siab

• Lwm hom MS
• Qhov tshwm sim rau PPMS yog dab tsi?
• PPMS thiab SPMS
• PPMS thiab RRMS
• Cov tsos mob ntawm PPMS zoo li cas?
• Dab tsi ua rau PPMS?
• Yuav kuaj li cas thiaj paub PPMS?
• Yuav kho tus mob PPMS li cas?
• Cov kev hloov pauv hauv lub neej pab rau PPMS yog dab tsi?
• PPMS hloov kho
• Txhawb nqa
• Outlook
• Nqa Nyiaj

Ntau yam sclerosis (MS) yog ib qho kev kho mob autoimmune tsis zoo uas cuam tshuam rau cov leeg ntshav ntawm lub paj hlwb, txha caj qaum, thiab hlwb.

Cov neeg uas kuaj mob nrog MS feem ntau muaj kev sib txawv heev. Qhov no yog qhov tseeb tshwj xeeb tshaj yog rau cov neeg kuaj mob nrog thawj tus kab mob sib ntau (sclerosis) (PPMS), uas yog MS tsawg.

PPMS yog ib hom txawv ntawm MS. Nws tsis suav nrog kev o ntau npaum li MS daim ntawv rov ua mob tuaj.

Cov tsos mob tseem ceeb ntawm PPMS tshwm sim los ntawm kev puas tsuaj hlab ntsha. Cov tsos mob no tshwm sim vim tias cov leeg tsis muaj peev xwm xa thiab tau txais cov lus kom sib.

Yog tias koj muaj PPMS, muaj ntau ntawm kev taug kev ntawm kev tsis taus ntau dua li lwm cov tsos mob, thaum piv nrog cov neeg uas muaj lwm hom MS.

PPMS tsis tshua muaj ntau yam. Nws cuam tshuam txog 10 rau 15 feem pua ​​ntawm cov neeg kuaj mob nrog MS. PPMS tau zoo zuj zus txij li lub sijhawm koj pom koj cov tsos mob thawj zaug (thawj).

Qee hom MS muaj lub sij hawm mob rov huam thiab rov ua dua tshiab. Tab sis cov tsos mob ntawm PPMS tau hnov ​​dua maj mam tab sis maj mam dhau sijhawm. Cov neeg uas muaj PPMS tuaj yeem tseem muaj mob rov huam tuaj.

PPMS tseem ua rau cov leeg hlwb tsis ua haujlwm sai dua li lwm hom MS. Tab sis qhov mob hnyav ntawm PPMS thiab nws tshwm sim sai npaum li cas nyob ntawm txhua kis.

Qee tus neeg kuj yuav muaj txuas ntxiv ntawm PPMS uas muaj qhov hnyav dua. Lwm tus yuav muaj ntu tsis xwm yeem uas tsis muaj cov tsos mob tshwm sim, lossis lub sijhawm muaj kev txhim kho me me.

Cov tib neeg uas tau kuaj ib zaug tias muaj mob huam vam MS (PRMS) tam sim no suav hais tias yog thawj qhov tseem ceeb.

Lwm hom MS

Lwm hom MS yog:

• cov kws saib xyuas mob sib cais (CIS)
• relapsing-remitting MS (RRMS)
• theem nrab hnyav MS (SPMS)

Cov hom no, tseem hu ua kev kawm, yog txhais los ntawm qhov lawv cuam tshuam rau koj lub cev.

Txhua yam muaj cov kev kho mob sib txawv nrog ntau cov kev kho mob sib tshooj. Qhov heev ntawm lawv cov tsos mob thiab qhov pom lub sij hawm ntev kuj tseem yuav sib txawv.

CIS yog ib hom tshiab ntawm MS. CIS tshwm sim thaum koj muaj tib lub sij hawm ntawm cov tsos mob ntawm lub paj hlwb uas nyob ntev li 24 teev.

Qhov tshwm sim rau PPMS yog dab tsi?

Qhov tshwm sim ntawm PPM yog qhov txawv rau txhua tus neeg thiab kev xav tsis txog.

Cov tsos mob yuav pom ntau dua sijhawm, tshwj xeeb tshaj yog thaum koj laus zuj zus thiab koj pib poob qee qhov haujlwm hauv cov kabmob xws li koj lub zais zis, plab hnyuv, thiab caj ces vim lub hnub nyoog thiab PPMS.

PPMS thiab SPMS

Ntawm no yog qhov sib txawv tseem ceeb ntawm PPMS thiab SPMS:

• SPMS feem ntau pib ua raws li kev kuaj mob ntawm RRMS uas thaum kawg ua rau hnyav dua lub sijhawm tsis muaj kev tshem tawm lossis txhim kho cov tsos mob.
• SPMS yeej ib txwm ua ntu thib ob ntawm kev kuaj mob MS, thaum RRMS yog kev kuaj mob thawj zaug ntawm nws tus kheej.

PPMS thiab RRMS

Nov yog qhov sib txawv tseem ceeb ntawm PPMS thiab RRMS:

• RRMS yog ntau hom MS (kwv yees li 85 feem pua ​​ntawm kev kuaj mob), thaum PPMS yog ib qho tsis tshua muaj neeg paub.
• RRMS yog ob zaug rau peb zaug li feem ntau ntawm cov poj niam xws li hauv txiv neej.
• Kev mob tshwm sim ntawm cov tsos mob tshiab tshwm sim ntau dua hauv RRMS dua li ntawm PPMS.
• Thaum lub sij hawm so hauv RRMS, koj yuav tsis pom cov tsos mob hlo li, lossis tsuas yog muaj qee qhov tsos mob uas tsis loj heev.
• Feem ntau, cov hlwb txhab ntxiv rau ntawm lub hlwb MRIs nrog RRMS dua li nrog PPMS yog tias tsis kho.
• RRMS nyhav rau kev kuaj pom ntau yam thaum ntxov hauv lub neej dua li PPMS, ncig thaj tsam 20s thiab 30s, uas cuam tshuam rau 40s thiab 50s nrog PPMS.

Cov tsos mob ntawm PPMS zoo li cas?

PPMS cuam tshuam rau txhua tus neeg sib txawv.

Cov tsos mob tshwm sim thaum ntxov ntawm PPMS muaj xws li tsis muaj zog hauv koj txhais ceg thiab muaj teeb meem taug kev. Cov tsos mob no feem ntau yuav pom tseeb hauv lub sijhawm 2 xyoos.

Lwm cov tsos mob feem ntau ntawm tus mob muaj xws li:

• txhav txhav hauv qab ceg
• teeb meem nrog tshuav
• kev mob
• tsis muaj zog thiab nkees
• teeb meem tsis pom kev
• zais zis los sis tso plab tsis ua hauj lwm
• kev nyuaj siab
• nkees
• loog thiab / lossis tingling hauv ntau qhov chaw ntawm lub cev

Dab tsi ua rau PPMS?

Qhov tseeb ua rau PPMS, thiab MS feem ntau tsis paub.

Cov kev xav ntau tshaj yog MS pib thaum koj lub cev tiv thaiv kab mob pib tua koj lub hauv nruab nrab cov hlab hlwb txhaws. Qhov no ua rau cov myelin ploj, cov ntaub npog ib puag ncig ntawm cov leeg ntshav hauv koj lub paj hlwb.

Txawm hais tias cov kws kho mob tsis ntseeg tias PPMS tuaj yeem tau txais cov txiaj ntsig, nws yuav muaj caj ces muaj caj ces. Qee tus neeg ntseeg tias nws yuav tshwm sim los ntawm tus kab mob los yog los ntawm cov taug lom hauv ib puag ncig uas thaum ua ke nrog kev sib deev caj ces tuaj yeem ua rau muaj kev pheej hmoo ntawm kev tsim MS.

Yuav kuaj li cas thiaj paub PPMS?

Ua haujlwm nrog koj tus kws kho mob txhawm rau txhawm rau txhawm rau txhawm rau txhawm rau pab kev txheeb xyuas yam twg ntawm plaub hom MS uas koj muaj.

Txhua hom MS muaj qhov sib txawv thiab cov kev xav tau sib txawv. Tsis muaj ib qho kev sim tshwj xeeb uas muab PPMS kuaj.

Cov kws kho mob feem ntau muaj teeb meem nyuaj kev kuaj mob PPMS piv nrog rau lwm hom MS thiab lwm yam kev mob.

Qhov no vim tias qhov teeb meem mob hlwb yuav tsum muaj kev vam meej li 1 lossis 2 xyoos txhawm rau kom ib tug neeg tau txais kev soj ntsuam PPMS ruaj.

Lwm cov mob uas muaj cov tsos mob zoo ib yam li PPMS muaj:

• ib qho xwm txheej mob uas tau ua rau cov ceg txhav, tsis muaj zog
• muaj vitamin B-12 tsis txaus uas ua rau cov tsos mob zoo sib xws
• Lyme kab mob
• kis kab mob, xws li tib neeg mob T-cell mob ntshav tes taw hom 1 (HTLV-1)
• cov kev mob caj dab, xws li mob caj qaum
• mob qog ze ntawm tus txha nqaj qaum

Kev kuaj mob PPMS, koj tus kws kho mob yuav:

• ntsuas koj cov tsos mob
• tshuaj xyuas koj cov keeb kwm neurological
• ua kev soj ntsuam ntawm lub cev uas tsom mus rau koj cov leeg thiab leeg
• ua MRI scan ntawm koj lub hlwb thiab tus txha caj qaum
• ua lub caj dab txha caj qaum kom kuaj xyuas cov cim MS nyob rau hauv cov leeg txha caj qaum
• coj kev ntsuam xyuas qhov muaj peev xwm (EP) cov kev xeem txhawm rau txhawm rau txheeb xyuas qhov tshwj xeeb MS; Cov kev kuaj EP sim tawm cov kev paub txog ntawm txoj hlab ntshav kom txiav txim siab hluav taws xob lub hlwb

Yuav kho tus mob PPMS li cas?

Ocrelizumab (Ocrevus) yog tib lub tshuaj pom zoo los ntawm Lub Chaw Tswj Xyuas Khoom Noj thiab Tshuaj (FDA) los kho PPMS. Nws pab txwv cov hlab ntsha tsis zoo.

Qee cov tshuaj kho qee yam tsos mob ntawm PPMS, xws li:

• leeg nruj
• kev mob
• nkees
• lub zais zis thiab txoj hnyuv cov teeb meem.

Muaj ntau ntau cov kev kho mob hloov kab mob (DMTs) thiab cov tshuaj steroids pom zoo los ntawm FDA rau kev rov ua daim ntawv ntawm MS.

Cov DMTs no tsis yog siv los kho PPMS.

Muaj ntau txoj kev kho mob tshiab tau tsim tawm rau PPMS los pab txo qhov mob uas cuam tshuam tshwj xeeb rau koj lub leeg.

Qee qhov no kuj pab daws kev puas tsuaj thiab kho cov txheej txheem uas cuam tshuam rau koj cov leeg. Cov kev kho no tuaj yeem pab ua kom rov qab muaj myelin nyob ib ncig ntawm koj cov hlab ntsha puas tsuaj los ntawm PPMS.

Ib txoj kev kho mob, ibudilast, tau siv nyob rau hauv Nyij Pooj rau ntau tshaj 20 xyoo los kho mob hawb pob thiab tej zaum yuav muaj qee qhov muaj peev xwm kho kev mob hauv PPMS.

Lwm txoj kev kho mob hu ua masitinib tau siv rau kev ua xua los ntawm kev hom phiaj mast hlwb koom nrog kev ua xua thiab qhia tias tau cog lus ua kev kho mob rau PPMS, ib yam nkaus.

Nws yog ib qho tseem ceeb kom nco ntsoov tias ob txoj kev kho mob no tseem ntxov heev hauv kev txhim kho thiab tshawb fawb.

Cov kev hloov pauv hauv lub neej pab rau PPMS yog dab tsi?

Cov neeg uas muaj PPMS tuaj yeem daws cov kev mob tshwm sim nrog kev tawm dag zog thiab ncab mus rau:

• nyob li txawb tau
• txwv koj lub cev yuav hnyav npaum li cas
• nce qib zog

Nov yog qee qhov kev coj ua koj tuaj yeem ua los tswj koj cov tsos mob PPMS thiab tswj hwm koj lub neej zoo:

• Noj zaub mov zoo thiab noj zaub mov zoo.
• Nyob rau lub sijhawm pw tsaug zog.
• Mus rau kev pabcuam dag zog lossis tawm dag zog, uas tuaj yeem qhia koj cov tswv yim rau kev txav mus rau hauv lub cev thiab tswj cov tsos mob.

PPMS hloov kho

Plaub hloov kho yog siv los cim PPMS lub sijhawm dhau los:

• Nquag nrog kev loj hlob: PPMS nrog cov tsos mob hnyav zuj zus thiab rov ua dua lossis nrog MRI cov haujlwm tshiab; qhov ua tsis taus ntau ntxiv kuj yuav tshwm sim
• Nquag yam uas tsis muaj mob: PPMS nrog cov mob rov qab lossis MRI kev ua si, tab sis tsis muaj qhov ua tsis taus ntxiv lawm
• Tsis nquag nrog qhov muaj mob: PPMS tsis muaj kev cuam tshuam rov qab lossis MRI kev ua ub ua no, tab sis muaj kev xiam oob qhab ntau dua
• Tsis nquag yam tsis muaj mob: PPMS uas tsis muaj kev cuam tshuam rov qab, MRI kev ua si, lossis nce kev ua tsis tau zoo ntxiv

Tus cwjpwm tseem ceeb ntawm PPMS yog qhov uas tsis muaj kev taug tawm.

Txawm hais tias tus neeg PPMS pom lawv cov tsos mob tsis zoo - txhais tau tias lawv tsis muaj kev ua rau tus kab mob loj zuj zus lossis qhov ua rau neeg xiam oob qhab ntau ntxiv - lawv cov tsos mob tsis tshua zoo. Nrog rau daim ntawv no ntawm MS, cov neeg tsis rov qab ua haujlwm lawv tau ploj.

Txhawb nqa

Yog tias koj nyob nrog PPMS, nws yog qhov tseem ceeb kom nrhiav cov peev txheej txhawb. Muaj cov kev xaiv los mus nrhiav kev txhawb nqa ntawm ib tus neeg lossis hauv qhov dav hauv MS.

Ua neej nyob nrog tus kab mob mus ntev yuav ua rau mob lub siab. Yog koj muaj kev tu siab tsis tu ncua, chim siab, tu siab, los yog lwm yam nyuaj siab, qhia rau koj tus kws kho mob paub. Lawv yuav xa koj mus cuag cov kws paub txog kev mob hlwb uas tuaj yeem pab tau.

Koj tseem tuaj yeem nrhiav tus kws paub txog kev mob hlwb ntawm koj tus kheej. Piv txwv li, Asmeskas Kev Puas Siab Ntsws Lub Xeev muaj cov kev tshawb fawb los nrhiav cov kws kho hlwb thoob plaws Tebchaws Asmeskas. MentalHealth.gov tseem muaj txoj hauv kev xa npe pab rau kev kho mob.

Koj yuav pom tias nws yog ib qho zoo los tham nrog lwm tus neeg uas nyob nrog MS. Txiav txim siab saib mus rau hauv pab pawg txhawb nqa, hauv online lossis tus kheej.

National Multiple Sclerosis Society muaj kev pabcuam los pab koj nrhiav cov pab pawg hauv koj cheeb tsam. Lawv kuj tseem muaj qhov sib txuas lus sib txuas rau phooj ywg uas tau kawm los ntawm cov neeg ua haujlwm pab dawb uas nyob nrog MS.

Outlook

Tshawb xyuas koj tus kws kho mob tsis tu ncua yog tias koj muaj PPMS, txawm tias koj tsis tau muaj mob tshwm sim ib ntus thiab tshwj xeeb tshaj yog thaum koj muaj kev cuam tshuam ntau hauv koj lub neej los ntawm cov tsos mob tshwm sim.

Nws muaj peev xwm ua lub neej zoo nrog PPMS yog koj ua haujlwm nrog koj tus kws kho mob los nrhiav cov kev kho mob zoo tshaj plaws nrog rau kev ua neej thiab kev noj haus uas ua rau koj.

Nqa Nyiaj

Tsis muaj kev kho rau PPMS, tab sis kev kho mob ua rau txawv txav. Txawm hais tias tus mob loj zuj zus tuaj, tib neeg tuaj yeem pom lub sijhawm uas cov tsos mob tsis ua mob heev.

Yog tias koj nyob nrog PPMS, koj tus kws kho mob yuav pom zoo txoj kev npaj kho raws li koj cov tsos mob thiab kev noj qab haus huv thoob plaws.

Ua kom muaj tus cwj pwm noj qab haus huv thiab ua neej nyob txuas nrog cov kev pab txhawb kuj tseem tuaj yeem pab koj ua kom koj lub neej zoo thiab muaj kev noj qab nyob zoo.