Kev kho mob rau nemaline myopathy

Zoo Siab

• Cov tsos mob ntawm nemaline myopathy
• Cov cim ntawm kev txhim kho hauv nemaline myopathy
• Cov cim ntawm kev ua tsis zoo nemaline myopathy

Kev kho mob nemaline myopathy yuav tsum tau coj los ntawm tus kws kho menyuam yaus, tus menyuam thiab tus menyuam, lossis tus kws kho mob orthopedist, rau tus neeg laus, ua kom tsis txhob kho tus kabmob, tab sis kom daws thiab kho cov tsos mob, txhim kho lub neej zoo.

Feem ntau, kev kho yog pib nrog kev tawm dag zog ua ntu zus los pab ua kom cov leeg muaj zog uas yog ua kom lub cev tsis muaj zog los ntawm kev ua cov kev tawm dag zog tshwj xeeb los ntawm tus kws kho lub cev.

Ntxiv rau, thiab nyob ntawm cov tsos mob uas yuav tshwm sim, kev kho mob kuj tseem tuaj yeem ua nrog:

• Kev Siv Cov Qauv: nws yog cov khoom siv nrog lub npog ntsej muag uas siv hauv nruab nrab thiab mob hnyav los txhawb kev ua pa, tshwj xeeb thaum pw tsaug zog. Kawm ntxiv ntawm: CPAP;
• Siv lub rooj muaj log: nws yog qhov tsim nyog thaum muaj nemaline myopathy uas ua rau taug kev nyuaj vim qhov tsis muaj zog ntawm cov leeg ceg;
• Kev tso kawm ntawm txoj hlab ntsws (gastrostomy tube): nws muaj cov raj me me tso ncaj qha rau hauv lub plab uas tso cai pub mis rau hauv qhov xwm txheej loj;
• Nkag mus rau cov tshuaj tua kab mob: lawv siv qee qhov xwm txheej los kho kev mob ntsws, xws li mob ntsws, uas nquag tau los ntawm cov teeb meem ua pa los ntawm myopathy.

Hauv cov xwm txheej loj tshaj plaws, nws yuav tsum tau nyob hauv tsev kho mob kom thiaj li tsim nyog kho thiab zam dhau qhov kev mob nyhav, xws li ntes pa, uas ua rau tus neeg mob lub neej puas tsuaj.

Cov tsos mob ntawm nemaline myopathy

Cov tsos mob tseem ceeb ntawm nemaline myopathy muaj xws li:

• Nqaij ua kom tsis muaj zog, tshwj xeeb tshaj yog sab caj npab thiab ceg;
• Ua pa nyuaj lossis nqos;
• Kev loj hlob qeeb;
• Kev taug kev nyuaj.

Ntxiv nrog rau cov tsos mob no, nws kuj tseem muaj qee qhov kev tshwm sim, xws li lub ntsej muag nyias, lub cev nqaim, qhib lub qhov ncauj pom, hollow taw, hauv siab sib sib zog nqus thiab kev txhim kho ntawm scoliosis lossis osteoporosis.

Cov tsos mob feem ntau tshwm sim tom qab yug me nyuam vim tias nws yog kab mob caj ces, tab sis qee kis, thawj cov tsos mob tshwm sim tsuas yog ua neeg laus.

O kuaj mob nemalitic myopathy nws ua tiav nrog cov nqaij mus kuaj thaum muaj cov tsos mob ntawm lub siab ntawm tus kab mob, tshwj xeeb tshaj yog thaum kev loj hlob qeeb thiab cov leeg tsis muaj zog tshwm sim.

Cov cim ntawm kev txhim kho hauv nemaline myopathy

Tsis muaj cov cim ntawm kev txhim kho hauv nemaline myopathy, vim tus kab mob tsis zoo. Txawm li cas los xij, cov tsos mob tuaj yeem kho nrog kev kho mob, cia lub neej zoo dua qub.

Cov cim ntawm kev ua tsis zoo nemaline myopathy

Cov cim ntawm kev ua tsis zoo nemaline myopathy cuam tshuam nrog kev mob hnyav, xws li kev kis kab mob thiab ua pa ntes, thiab vim li ntawd suav nrog kub taub hau dhau 38ºC, nce nyuaj hauv kev ua pa, ua pa nyuaj, bluish ntiv tes thiab ntsej muag.