Hailey Bieber Qhia Tawm Nws Muaj Tus Cwj Pwm Mob hu ua Ectrodactyly - Tab sis Dab Tsi?

Zoo Siab

• Dab tsi yog ectrodactyly?
• Dab tsi ua rau ectrodactyly?
• Tshuaj xyuas rau

Trolls hauv Is Taws Nem yuav pom txhua txoj hauv kev lawv tuaj yeem thuam cov neeg nto moo lub cev - nws yog ib qho ntawm cov tshuaj lom tshaj plaws hauv kev tshaj xov xwm. Hailey Bieber, uas yav dhau los tau qhib txog yuav ua li cas kev tshaj xov xwm cuam tshuam rau nws kev noj qab haus huv lub hlwb, tsis ntev los no tau nug Instagram trolls kom tsis txhob "ci" ib feem ntawm nws lub ntsej muag uas koj yuav tsis xav tias yuav raug tshuaj xyuas thawj zaug: nws pinkies.

"Ok wb mus rau hauv kev sib tham pinky .. vim tias kuv tau ua kev lom zem ntawm kuv tus kheej txog qhov no mus ib txhis yog li kuv tsuas yog yuav qhia rau txhua tus paub tias yog vim li cas [kuv cov pinkies] nkhaus thiab txaus ntshai," Bieber sau hauv Instagram Story tias tau nthuav tawm ib daim duab ntawm nws saib pinky, lees paub, nkhaus me ntsis.

Tus qauv ntawd tau tshaj tawm qhia tawm tam sim no-tshem tawm cov duab ntawm Wikipedia nplooj ntawv rau tus mob hu ua ectrodactyly, raws li Xa Ntawv Txhua Hnub. "Kuv muaj qhov no hu ua ectrodactyly thiab nws ua rau kuv cov ntiv tes pinky saib zoo li lawv ua," Bieber tshaj tawm sau nrog rau Wikipedia screenshot, raws li UK xov xwm tshaj tawm. "Nws yog caj ces, kuv muaj nws tag kuv lub neej. Yog li cov neeg tuaj yeem nres nug kuv 'wtf tsis raug nrog nws cov ntiv tes pinky.'"

Dab tsi yog ectrodactyly?

Ectrodactyly yog ib daim ntawv ntawm kev sib faib tes/cais taw tsis zoo (SHFM), kev tsis zoo ntawm caj ces "yam ntxwv los ntawm qhov ua tiav lossis ib nrab ntawm qee cov ntiv tes lossis ntiv taw, feem ntau ua ke nrog kev sib tsoo hauv txhais tes lossis txhais taw," raws li Lub Koom Haum Hauv Tebchaws rau Tsawg Teeb meem (NORD). Qhov xwm txheej tuaj yeem muab txhais tes thiab taw zoo li "claw-like", thiab qee zaum, nws tuaj yeem ua rau pom qhov webbing ntawm cov ntiv tes lossis ntiv taw (hu ua syndactyly), raws li NORD.

Txawm hais tias SHFM tuaj yeem nthuav tawm hauv ntau txoj hauv kev sib txawv, muaj ob daim ntawv tseem ceeb. Thawj yog hu ua "lobster claw" ntau yam, hauv qhov uas "feem ntau tsis tuaj" ntawm tus ntiv tes nruab nrab; a "lub khob hliav qab zoo li tus kauv" hauv tus ntiv tes qhov tseem ceeb faib tes ua ob ntu (ua rau tes zoo li tus claw-zoo li lub npe), raws li NORD. Daim ntawv SHFM no feem ntau tshwm sim hauv ob txhais tes, thiab nws tseem tuaj yeem cuam tshuam rau taw, ib lub koom haum. Monodactyly, lwm daim ntawv tseem ceeb ntawm SHFM, hais txog qhov tsis muaj ntawm txhua tus ntiv tes tshwj tsis yog lub pinky, raws li NORD.

Nws tsis meej meej tias hom SHFM Bieber thov kom muaj -meej meej nws muaj tag nrho 10 tus ntiv tes ntawm nws txhais tes - tab sis raws li NORD sau tseg, muaj ntau qhov sib txawv "hom thiab ua ke ntawm kev hloov pauv" uas tuaj yeem tshwm sim nrog SHFM, thiab cov xwm txheej " dav hauv qhov hnyav. " (Muaj feem cuam tshuam: Tus Qauv no nrog Kev Txheeb Ze Tsis Taus Ua Rau Lub Cev Tsis Zoo)

Dab tsi ua rau ectrodactyly?

Raws li Bieber tshaj tawm hais hauv nws zaj dab neeg Instagram, ectrodactyly yog kev mob caj ces, txhais tau tias cov uas tau yug los nrog nws (txawm yog los ntawm kev tsim noob caj noob ces lossis kev hloov pauv ntawm cov noob tsis raug), raws li Lub Chaw Haujlwm Qhia Txog Kab Mob thiab Rare (GARD). SHFM, feem ntau, tuaj yeem cuam tshuam rau txiv neej thiab poj niam menyuam sib npaug. Kwv yees li ntawm ib ntawm txhua 18,000 tus menyuam yug tshiab tau yug los nrog qee yam ntawm tus mob, raws li NORD. Thaum SHFM tuaj yeem cuam tshuam rau cov tswv cuab ntawm tib tsev neeg, qhov xwm txheej tuaj yeem sib txawv hauv txhua tus neeg. Nws tau kuaj mob raws li "lub cev lub cev tam sim no thaum yug los" thiab lub cev tsis xwm yeem pom los ntawm X-ray kuaj, sau NORD.

Rau feem ntau, cov neeg uas muaj daim ntawv SHFM feem ntau ua lub neej ib txwm muaj, txawm hais tias qee tus yuav muaj "teeb ​​meem hauv kev ua haujlwm ntawm lub cev," nyob ntawm seb lawv qhov kev ua tsis raug yog hnyav npaum li cas, raws li NORD. Kuj tseem muaj "tsawg zaus ntawm SHFM" uas qee zaum nrog nrog lag ntseg, raws li kev tshawb fawb xyoo 2015 luam tawm hauv CHRISMED Phau ntawv Journal of Health and Research.

Ib cag los ntawm Bieber, tsis muaj ntau tus neeg pej xeem uas muaj qee yam ntawm SHFM (lossis tsawg kawg tsis ntau leej twg tau qhib txog qhov mob). Xov xwm tus thauj tog rau nkoj thiab tham qhia tus tswv tsev, Bree Walker thaum kawg tau mus rau pej xeem nrog nws qhov kev kuaj mob syndactyly (tus yam ntxwv los ntawm ob lossis ntau dua webbed lossis txuas tus ntiv tes) tom qab xyoo nkaum nws ob txhais tes hauv ib khub hnab looj tes. Rov qab rau hauv '80s, Walker hais Cov neeg feem ntau nws tau raug kev saib xyuas tsis zoo xws li saib thiab tsis xav tau kev tawm tswv yim los ntawm cov neeg txawv tebchaws txog txoj kev nws txhais tes thiab taw saib. Txij li Walker tau dhau mus dhau los ua tus neeg xiam oob khab txoj cai rau cov uas muaj cov xwm txheej zoo sib xws. (Muaj feem cuam tshuam: Jameela Jamil nyuam qhuav qhia tias nws muaj Ehlers-Danlos Syndrome)

Rau Bieber ib feem, nws tsis tau piav qhia yuav ua li cas, raws nraim, ectrodactyly tau cuam tshuam rau nws lub neej, thiab nws tsis tau hais txog seb nws puas muaj lwm yam kev ua tsis zoo li qhov pom ntawm nws tus ntiv tes pinky.

Uas tau hais tias, nws ib txwm muaj nqis nco ntsoov tias kev tawm tswv yim txog lwm tus neeg lub cev yeej tsis txias - tag nrho nres.

Tshuaj xyuas rau