Cov Kev Txuas Ntawm Exocrine Pancreatic Insufficiency thiab Cystic Fibrosis

Zoo Siab

• Dab tsi ua rau cystic fibrosis?
• Cov kev pheej hmoo txaus rau cystic fibrosis yog dab tsi?
• EPI thiab cystic fibrosis cuam tshuam li cas?
• Hom kev kho mob twg muaj rau EPI?
• Lub Neej Mus

Cystic fibrosis yog ib qho kev mob uas tau los ntawm caj ces uas ua rau cov kua hauv lub cev ua tuab thiab nplaum ua rau nyias thiab txhaws. Qhov no ua rau lub ntsws thiab lub plab zom mov.

Cov neeg mob cystic fibrosis muaj teeb meem ua pa vim tias hnoos qeev txhaws lawv lub ntsws thiab ua rau lawv kis tau yooj yim. Cov hnoos qeev ua tuab tuab kuj txhaws cov hnoos qeev thiab cuam tshuam qhov kev tso tawm ntawm cov hnyuv enzyme. Kwv yees li 90 feem pua ​​ntawm cov neeg uas mob cystic fibrosis kuj tseem tsim muaj exocrine pancreatic insufficiency (EPI).

Khaws nyeem ntawv kom paub ntau ntxiv txog kev sib raug zoo ntawm ob yam xwm txheej no.

Dab tsi ua rau cystic fibrosis?

Cystic fibrosis tshwm sim los ntawm kev puas tsuaj hauv CFTR caj ces. Kev hloov pauv hauv cov noob keeb no ua rau cov hlwb ua cov ntshav, ua kua nplaum. Feem ntau cov neeg mob cystic fibrosis kuaj tau thaum tseem hluas.

Cov kev pheej hmoo txaus rau cystic fibrosis yog dab tsi?

Cystic fibrosis yog ib hom kab mob caj ces. Yog tias koj niam koj txiv muaj tus kab mob lossis yog tias lawv muaj tus kab mob tsis xws luag, koj muaj feem ntau yuav kis tus kabmob. Tus neeg mob cystic fibrosis yuav tsum tau txais ob caj, hloov pauv ib qho, ntawm ib leej niam leej txiv. Yog tias koj nqa ib daim ntawv keeb ntawm cov gene xwb, koj yuav tsis muaj mob tawm pob tsuas tab sis koj yog tus muaj cov kab mob. Yog tias ob lub noob xeeb muaj tus menyuam, muaj 25 feem pua ​​ntawm qhov uas lawv tus menyuam yuav mob cystic fibrosis. Muaj 50 feem pua ​​txoj hmoo lawv cov me nyuam yuav nqa lub gene tab sis tsis muaj cystic fibrosis.

Cystic fibrosis kuj tseem muaj ntau dua nyob hauv cov neeg ntawm Qaum Teb European.

EPI thiab cystic fibrosis cuam tshuam li cas?

EPI yog qhov kev pheej hmoo loj ntawm cystic fibrosis. Cystic fibrosis yog yam thib ob uas muaj tshwm sim ntawm EPI, tom qab kev mob caj dab ntev. Nws tshwm sim vim tias cov hnoos qeev tuab hauv koj txoj hlab ntaws txiav cov hlab ntaws mus rau hauv txoj hnyuv.

Qhov tsis muaj pancreatic enzymes txhais tau tias koj lub plab zom tau hla ib feem ntawm cov zaub mov tsis muaj kev tiv thaiv. Cov rog thiab cov protein yog qhov tshwj xeeb tshaj yog nyuaj rau cov neeg muaj EPI kom zom.

Qhov kev zom ib feem thiab nqus cov zaub mov tuaj yeem ua rau:

• mob plab
• tsam plab
• cem quav
• zawv plab
• rog thiab ua kom quav
• poob phaus
• khoom noj khoom haus tsis muaj zog

Txawm hais tias koj noj cov zaub mov zoo, cystic fibrosis tuaj yeem ua rau nws nyuaj rau kev tswj kom lub cev noj qab nyob zoo.

Hom kev kho mob twg muaj rau EPI?

Kev noj qab nyob zoo thiab kev noj zaub mov zoo yuav pab koj tswj hwm koj EPI. Qhov no txhais tau tias txiav cov kev haus cawv kom tsawg, kom tsis txhob haus luam yeeb, thiab noj zaub mov kom muaj txiaj ntsig ntawm kev muaj zaub thiab nplej ntau ntau. Cov neeg feem ntau uas mob cystic fibrosis tuaj yeem noj cov khoom noj uas muaj 35 txog 45 feem pua ​​ntawm cov calories yog los ntawm cov rog.

Koj yuav tsum tau noj cov enzyme hloov nrog koj txhua pluas noj thiab khoom txom ncauj kom txhim kho kev zom mov. Kev siv tshuaj ntxiv tuaj yeem pab tsim cov vitamins uas EPI tiv thaiv koj lub cev los ntawm kev nqus.

Yog tias koj tsis muaj peev xwm tswj xyuas qhov hnyav kom tsis muaj mob, koj tus kws kho mob yuav hais kom siv lub raj mis pub mis hmo ntuj kom tiv thaiv kev ua kom tsis muaj teeb meem ntawm EPI.

Nws yog ib qho tseem ceeb rau koj tus kws kho mob saib xyuas koj txoj haujlwm pancreatic, txawm hais tias tam sim no koj tsis ua haujlwm qis dua vim tias nws yuav poob rau yav tom ntej. Ua li ntawd yuav ua rau koj tus mob ntau tswj tau thiab tuaj yeem txo koj txoj kev pheej hmoo ntxiv rau koj tus txiav.

Lub Neej Mus

Sij hawm dhau los, cov neeg mob cystic fibrosis muaj lub neej luv luv uas yuav vam meej. Niaj hnub no, 80 feem pua ​​ntawm cov neeg uas mob cystic fibrosis ncav cuag kev laus. Qhov no yog vim muaj kev nce qib loj hauv kev kho thiab tus yam ntxwv tswj hwm. Yog li thaum tseem tsis tau muaj txoj kev kho tus mob cystic fibrosis, muaj kev cia siab ntau.